We recently had the opportunity to host our second Hope Gathering at GiGi’s Playhouse NYC! (Our first Hope Gathering was at the Denver Zoo in October.) Our Hope Gatherings are an opportunity for people with Down syndrome, and their families, to connect with other families in their local community, learn about local Down syndrome organization(s) in their community, and receive information about how they can use their unique story to be a source …
Meet Lainey: A Two Year Old With Down Syndrome…Who Can Impersonate Chewbacca!
Are you a parent of a child born with Down syndrome, and interested in Hope Story sharing your story? Click here to learn more! Your Child’s First Name Lainey Your Child’s Age 2 Your State South Carolina Does Your Child Have Siblings? Kasey (girl) age 7 Bayleigh age 5 Baby brother or sister coming in February! Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? Post How Was The …
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A Day of Hope at the Denver Zoo: Our First Hope Gathering!
One of Hope Story’s goals is to help connect parents to other parents (and have some fun in the process!) One of the ways we hope to accomplish this is by having Hope Gatherings across the United States. What is a Hope Gathering? A Hope Gathering is an opportunity for people with Down syndrome, and their families, to connect with other families in their local community, receive information about their …
Dominique’s Story: A General Education Inclusion Story
Are you a parent of a child born with Down syndrome, and interested in Hope Story sharing your story? Click here to learn more! —————— Your Child’s First Name Dominique Your Child’s Age 18 Your State Alabama Does Your Child Have Siblings? Yes. ( Danielle) 1 sister age 22, who is a Senior at Samford and volunteers with our local DS support group and our special needs support group at …
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A Hope Perspective: John and Christian
A few weeks ago I received an email from a student at Texas A&M University (Christian) who wanted to get involved with Hope Story. He had volunteered at a summer camp this past summer where we met and became best friends with John, a 24 year old with Down syndrome. We had breakfast this past Friday, and I was encouraged to hear him talk about his friendship with John, and …
Meet Emerson: Pulmonary Hypertension Was No Problem for This Two-Year-Old with Down Syndrome!
Your Child’s First Name Emerson Your Child’s Age 2 Your State Ohio Does Your Child Have Siblings? Yes. He has an older sister and an older brother. Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? We had a postnatal diagnosis. We had concerns about his breathing shortly after birth. The NICU team came down and determined he just had some fluid that he had to work out. After …
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Weston’s Story: A Short Stay In The NICU Was No Problem For This Two-Year-Old with Down Syndrome
Your Child’s First Name Weston Your Child’s Age 2 Your State Virginia Does Your Child Have Siblings? Yes, one older sibling. Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? Prenatal How Was The Experience Surrounding Your Child’s Delivery? Delivery became an emergency when he stopped moving in the womb. However, all the staff were warm and reassuring that they had the situation under control. He was welcomed with …
Meet Teddy: A Positive Prenatal Down Syndrome Diagnosis Story
Your Child’s First Name Teddy Your Child’s Age 4 Your State Iowa Does Your Child Have Siblings? No Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? Prenatal diagnosis How Was The Experience Surrounding Your Child’s Delivery? Easy, we had wonderful hospital staff from diagnosis through postnatal! Since we knew ahead of time, there was a pediatric team especially for Teddy to make sure he’d be okay! What Was …
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CC’s Story: How a Mom Chose Life Despite Her Doctor Pushing Termination
Your Child’s First Name Caroline (“CC”) Your Child’s Age 19 months Your State Virginia Does Your Child Have Siblings? Yes. Amelia age 3.5. Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? We had a prenatal diagnosis. It was very early, around 15-16 weeks when we were first told about the possibility of Down syndrome. The doctor’s office handled it very poorly from the first phone call, so I …
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Amor’s Story: How Infertility Prepared a Family for a Child With Down Syndrome
Are you a parent of a child born with Down syndrome, we’d like to hear your story. Click here to share your story! Click here to sign up to receive updates from Hope Story. Your Child’s First Name Amor Your Child’s Age 8 months Do You Have a Website / Blog? Yes What is Your Website Www.alilextraamor.com Your State California Does Your Child Have Siblings? No, not yet but we plan to …