Meet Emerson: Pulmonary Hypertension Was No Problem for This Two-Year-Old with Down Syndrome!

young boy with Down syndrome

Your Child’s First Name Emerson Your Child’s Age 2 Your State Ohio Does Your Child Have Siblings? Yes. He has an older sister and an older brother. Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? We had a postnatal diagnosis. We had concerns about his breathing shortly after birth. The NICU team came down and determined he just had some fluid that he had to work out. After …

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Weston’s Story: A Short Stay In The NICU Was No Problem For This Two-Year-Old with Down Syndrome

boy with down syndrome wearing bow tie

Your Child’s First Name Weston Your Child’s Age 2 Your State Virginia Does Your Child Have Siblings? Yes, one older sibling. Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? Prenatal How Was The Experience Surrounding Your Child’s Delivery? Delivery became an emergency when he stopped moving in the womb. However, all the staff were warm and reassuring that they had the situation under control. He was welcomed with …

Meet Teddy: A Positive Prenatal Down Syndrome Diagnosis Story

child with down syndrome in pool black hair

Your Child’s First Name Teddy Your Child’s Age 4 Your State Iowa Does Your Child Have Siblings? No Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? Prenatal diagnosis How Was The Experience Surrounding Your Child’s Delivery? Easy, we had wonderful hospital staff from diagnosis through postnatal! Since we knew ahead of time, there was a pediatric team especially for Teddy to make sure he’d be okay! What Was …

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CC’s Story: How a Mom Chose Life Despite Her Doctor Pushing Termination

girl with down syndrome at the beach

Your Child’s First Name Caroline (“CC”) Your Child’s Age 19 months Your State Virginia Does Your Child Have Siblings? Yes. Amelia age 3.5. Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? We had a prenatal diagnosis. It was very early, around 15-16 weeks when we were first told about the possibility of Down syndrome. The doctor’s office handled it very poorly from the first phone call, so I …

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Amor’s Story: How Infertility Prepared a Family for a Child With Down Syndrome

down syndrome infertility birth story

Your Child’s First Name Amor Your Child’s Age 8 months Do You Have a Website / Blog? Yes What is Your Website Www.alilextraamor.com Your State California Does Your Child Have Siblings? No, not yet but we plan to have two more kids! Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? Postnatal How Was The Experience Surrounding Your Child’s Delivery? Very dear biased and insensitive What Was It Like …

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Meet Ryker: A 7 Years Old Boy With Down Syndrome Who Loves to Sing

child with down syndrome in pool

Your Child’s First Name Ryker Your Child’s Age 7 Your State Colorado Does Your Child Have Siblings? Yes a brother Cayne who is 5 years old Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? Postnatal How Was The Experience Surrounding Your Child’s Delivery? If I knew then what I know now it would’ve been a lot different. Ryker was 3 weeks early so when my water broke at …

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Meet CJ: A Single Parent Adoption Story

down syndrome-international adoption story

Your Child’s First Name CJ Your Child’s Age 4 Your State Iowa Does Your Child Have Siblings? Soon to be adopted little sister. Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? Postnatal How Was The Experience Surrounding Your Child’s Delivery? CJ’s birth mom was living in Florida in 2013. She reportedly did not find out she was pregnant till 33 weeks (first trip to the doctor). She created …

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2018 National Down Syndrome Congress Annual Convention Recap

hope story leadership

This past weekend Hope Story had the opportunity to be an exhibitor at the 2018 National Down Syndrome Congress Annual Convention. We had a great experience, and it’s safe to say this was a perfect conference to introduce Hope Story to the world! Our booth had a step and repeat so people could take pictures that we shared on our Facebook page, as well as a television playing our cinematic …

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Meet Lucas, The Gerber Baby Born With Down Syndrome

Child’s First Name Lucas Age 2 State Georgia Did You Have Prenatal or Postnatal Down Syndrome Diagnosis Post. We were told by his pediatrician roughly 12 hours after his birth. How Was The Experience Surrounding Your Child’s Delivery? Overall it was good. Lucas was five weeks early. I was in labor for 36 hours. What Was It Like Bringing Home a Baby with Down Syndrome? Lucas was in the NICU …

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Meet Hannah Grace, a Girl Who Loves to Dance

mom kissing daughter with down syndrome

Child’s First Name Hannah Grace Age 4 State Nashville, TN Siblings No Siblings Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? I didn’t know Hannah had down syndrome until she was born. I had zero complications during pregnancy and the only thing that was mentioned ‘abnormal’ during my check-ups was that I was “measuring small’. What’s astounding to me is that very same doctor who said I was …