Meet Lainey: A Two Year Old With Down Syndrome…Who Can Impersonate Chewbacca!

A two year old at Disney World meeting a Star Wars character

Are you a parent of a child born with Down syndrome, and interested in Hope Story sharing your story? Click here to learn more! Your Child’s First Name Lainey Your Child’s Age 2 Your State South Carolina Does Your Child Have Siblings? Kasey (girl) age 7 Bayleigh age 5 Baby brother or sister coming in February! Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? Post How Was The …

A Day of Hope at the Denver Zoo: Our First Hope Gathering!

Children with Down syndrome at the Denver zoo for first Hope Gathering

One of Hope Story’s goals is to help connect parents to other parents (and have some fun in the process!) One of the ways we hope to accomplish this is by having Hope Gatherings across the United States. What is a Hope Gathering? A Hope Gathering is an opportunity for people with Down syndrome, and their families, to connect with other families in their local community, receive information about their …

Dominique’s Story: A General Education Inclusion Story

girl with down syndrome yellow dress

Are you a parent of a child born with Down syndrome, and interested in Hope Story sharing your story? Click here to learn more! —————— Your Child’s First Name Dominique Your Child’s Age 18 Your State Alabama Does Your Child Have Siblings? Yes. ( Danielle) 1 sister age 22, who is a Senior at Samford and volunteers with our local DS support group and our special needs support group at …

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A Hope Perspective: John and Christian

texas a and m pals camps

A few weeks ago I received an email from a student at Texas A&M University (Christian) who wanted to get involved with Hope Story. He had volunteered at a summer camp this past summer where we met and became best friends with John, a 24 year old with Down syndrome. We had breakfast this past Friday, and I was encouraged to hear him talk about his friendship with John, and …

Meet Emerson: Pulmonary Hypertension Was No Problem for This Two-Year-Old with Down Syndrome!

young boy with Down syndrome

Your Child’s First Name Emerson Your Child’s Age 2 Your State Ohio Does Your Child Have Siblings? Yes. He has an older sister and an older brother. Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? We had a postnatal diagnosis. We had concerns about his breathing shortly after birth. The NICU team came down and determined he just had some fluid that he had to work out. After …

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Weston’s Story: A Short Stay In The NICU Was No Problem For This Two-Year-Old with Down Syndrome

boy with down syndrome wearing bow tie

Your Child’s First Name Weston Your Child’s Age 2 Your State Virginia Does Your Child Have Siblings? Yes, one older sibling. Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? Prenatal How Was The Experience Surrounding Your Child’s Delivery? Delivery became an emergency when he stopped moving in the womb. However, all the staff were warm and reassuring that they had the situation under control. He was welcomed with …

Meet Teddy: A Positive Prenatal Down Syndrome Diagnosis Story

child with down syndrome in pool black hair

Your Child’s First Name Teddy Your Child’s Age 4 Your State Iowa Does Your Child Have Siblings? No Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? Prenatal diagnosis How Was The Experience Surrounding Your Child’s Delivery? Easy, we had wonderful hospital staff from diagnosis through postnatal! Since we knew ahead of time, there was a pediatric team especially for Teddy to make sure he’d be okay! What Was …

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CC’s Story: How a Mom Chose Life Despite Her Doctor Pushing Termination

girl with down syndrome at the beach

Your Child’s First Name Caroline (“CC”) Your Child’s Age 19 months Your State Virginia Does Your Child Have Siblings? Yes. Amelia age 3.5. Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? We had a prenatal diagnosis. It was very early, around 15-16 weeks when we were first told about the possibility of Down syndrome. The doctor’s office handled it very poorly from the first phone call, so I …

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Amor’s Story: How Infertility Prepared a Family for a Child With Down Syndrome

down syndrome infertility birth story

Your Child’s First Name Amor Your Child’s Age 8 months Do You Have a Website / Blog? Yes What is Your Website Www.alilextraamor.com Your State California Does Your Child Have Siblings? No, not yet but we plan to have two more kids! Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? Postnatal How Was The Experience Surrounding Your Child’s Delivery? Very dear biased and insensitive What Was It Like …

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Meet Ryker: A 7 Years Old Boy With Down Syndrome Who Loves to Sing

child with down syndrome in pool

Your Child’s First Name Ryker Your Child’s Age 7 Your State Colorado Does Your Child Have Siblings? Yes a brother Cayne who is 5 years old Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? Postnatal How Was The Experience Surrounding Your Child’s Delivery? If I knew then what I know now it would’ve been a lot different. Ryker was 3 weeks early so when my water broke at …