In this blog post we share the story of Ivy. A six month old girl with Down syndrome who is working hard to overcome some feeding concerns.
7
Meet Coldon: A Triplet with Down Syndrome
Are you a parent of a child born with Down syndrome, we’d like to hear your story. Click here to share your story! Click here to sign up to receive updates from Hope Story. Your Child’s First Name Coldon Your Child’s Age 12 months Do You Have a Website / Blog? Yes What is Your Website www.coldonskrewe.com Your State Louisiana Does Your Child Have Siblings? Yes. Coldon is a triplet and …
4
Killian’s Story: How a Cystic Hygroma Led to a Prenatal Down Syndrome Diagnosis
Are you a parent of a child born with Down syndrome, and interested in Hope Story sharing your story? Click here to learn more! Your Child’s First Name Killian Your Child’s Age 2 Your State Pennsylvania Does Your Child Have Siblings? Killian has an older brother, Kayson. He is Killian’s biggest fan and a wonderful helper and teacher. Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? We had …
1
2018 Year in Review
What an exciting year 2018 has been for Hope Story! A year ago, we had no logo, no website, no Board of Directors. In fact, we weren’t even an official organization. What a difference a year can make. Today Hope Story is a recognized 501(c)(3) non-profit public charity, and well on our way of providing hope to families who whose child has just received a Down syndrome diagnosis. We were …
1
Our Second Hope Gathering: GiGi’s Playhouse NYC
We recently had the opportunity to host our second Hope Gathering at GiGi’s Playhouse NYC! (Our first Hope Gathering was at the Denver Zoo in October.) Our Hope Gatherings are an opportunity for people with Down syndrome, and their families, to connect with other families in their local community, learn about local Down syndrome organization(s) in their community, and receive information about how they can use their unique story to be a source …
Meet Lainey: A Two Year Old With Down Syndrome…Who Can Impersonate Chewbacca!
Are you a parent of a child born with Down syndrome, and interested in Hope Story sharing your story? Click here to learn more! Your Child’s First Name Lainey Your Child’s Age 2 Your State South Carolina Does Your Child Have Siblings? Kasey (girl) age 7 Bayleigh age 5 Baby brother or sister coming in February! Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? Post How Was The …
3
A Day of Hope at the Denver Zoo: Our First Hope Gathering!
One of Hope Story’s goals is to help connect parents to other parents (and have some fun in the process!) One of the ways we hope to accomplish this is by having Hope Gatherings across the United States. What is a Hope Gathering? A Hope Gathering is an opportunity for people with Down syndrome, and their families, to connect with other families in their local community, receive information about their …
Dominique’s Story: A General Education Inclusion Story
Are you a parent of a child born with Down syndrome, and interested in Hope Story sharing your story? Click here to learn more! —————— Your Child’s First Name Dominique Your Child’s Age 18 Your State Alabama Does Your Child Have Siblings? Yes. ( Danielle) 1 sister age 22, who is a Senior at Samford and volunteers with our local DS support group and our special needs support group at …
4
A Hope Perspective: John and Christian
A few weeks ago I received an email from a student at Texas A&M University (Christian) who wanted to get involved with Hope Story. He had volunteered at a summer camp this past summer where we met and became best friends with John, a 24 year old with Down syndrome. We had breakfast this past Friday, and I was encouraged to hear him talk about his friendship with John, and …
Meet Emerson: Pulmonary Hypertension Was No Problem for This Two-Year-Old with Down Syndrome!
Your Child’s First Name Emerson Your Child’s Age 2 Your State Ohio Does Your Child Have Siblings? Yes. He has an older sister and an older brother. Did You Have a Prenatal or Postnatal Down Syndrome Diagnosis? We had a postnatal diagnosis. We had concerns about his breathing shortly after birth. The NICU team came down and determined he just had some fluid that he had to work out. After …